Monday, March 19, 2018

An Open Letter to Save My Life

UPDATE:

I NO LONGER NEED A KIDNEY TRANSPLANT.  I RECEIVED MY KIDNEY TRANSPLANT.  HURRAY!

THIS PAGE USED TO SAY THE FOLLOWING, BUT I'VE BEEN SAVED!  I AM BLESSED AND I AM SO EVER GRATEFUL.

Help me by Sharing this Post:
I am Fred.  I need a kidney.  Not necessarily your kidney, but someone's.  You can help just by sharing this post with your friends on FaceBook.  Together we can find that angel willing to do the extraordinary to save my life.

Fred and Barbara Howe and Family

I have end-stage renal failure due to Focal Segmental Glomerulosclerosis ("FSGS").  I have been on dialysis for three years.  I desperately need an angel now to step forward to save my life by volunteering to give me a kidney (blood type O, but any type could work through Paired Kidney Exchange, discussed below).  Tall order, I know.  It's a big ask.  So I'm not asking.  But I am asking for your help in another way.  There's something else that you can do to help me (and others with a similar need), even if you're not a donor: I need you to spread the word by sharing this request, and I'll show you how to do that in this post.  Your job simply would be to get the word out about my need for a kidney.

I am told that the more people who know of my need, the better my chance is of reaching a person willing to be an altruistic donor.  So, now it's all about getting the word out.  That's where you come in.

Who Am I?
I am a husband, father and grandfather.  I am a friend. I am a kind, compassionate and mindful individual. I volunteer as a judge at antique car shows.  I help people who need help.  I worked for many years in the food service industry, managing a university lunch rooms and a restaurant.

My most precious moments are those spent with my grandchildren.  I hope to watch my amazing grandchildren continue to grow and start families of their own someday.

My wife noticed that I always tell my grandchildren, "you can change the world."  A friend's kidney donor said that she has taught her children "to change the world, you have to be the change."

How to Help Me:
I need your help to find a kidney donor so I can live.

Please give me 15 minutes (or more) and use that time to tell the world about this website (4FredAKidney.com).
  • Email: Send this website to your friends (all of them) by email.
  • Facebook: Post a small note on Facebook with a link to this website (icon above).
  • LinkedIn: Post a small note on LinkedIn with a link to this website (icon above).
  • Other Social Media Sites: Post a small note with a link to this website (icons below). 
And ask your contacts, readers, friends and acquaintances to do the same (to give this webpage exponential distribution).  
 
Why this is So Serious - My Options: 
Most people have two well-functioning kidneys but can lead a full and equally healthy life with just one kidney.  Both of my kidneys are almost fully shut down by PKD.  So, medically I now have only two options to continue living:
  • dialysis (life expectancy about 5 years)
  • transplant (a new lease on life)
According to USRDS data, Kidney transplant recipients fare far better than dialysis patients. I need those additional years in order to continue helping others.

My family members are medically disqualified as donors because of the genetic nature of PKD.

Also, if a willing donor is not an exact match, through an arrangement called "Paired Kidney Donation" (kidney swapping) a donor who is not a match for me might be a match for someone else and I would be eligible to receive that person's donor's kidney that would be a match for me. 

If You'd Like More Information:
For more information, see "Becoming a Kidney Donor" and/or watch this short video. 

Lloyd E. Ratner, MD New York Presbyterian-Columbia

To Speak with Someone Confidentially:
If you'd like to speak with someone confidentially (without disclosing your inquiry to me), please call Renewal of Life* at 718-431-9831 x 209, or email to R1044@Renewal.org.  My Patient ID is R1044.  Your questions will be answered by a qualified person who is familiar with my case.  Renewal is a not-for-profit organization that helps kidney donors navigate the donation process.  They are very knowledgeable and helpful.

Speaking with a Renewal staff member is much better than speaking with me.  They know far more than I do and you will get better information from them than from me.  So please, feel free to contact Renewal.

Keep in mind that a confidential phone call to Renewal does not come with any obligations to proceed further.

Help Me by Sharing.  Unfortunately, "Likes" are Not Enough:
So, please help me by Sharing this post with your Facebook and other friends.  Please do more than "like" or comment.  Likes and comments are the "hopes and prayers" of social media.  Shares = action; the action needed here.

I need your help to find a kidney donor so I can live.

Together, we can do this.  Yes we can.

Thank you,

Fred

______________
*Renewal of Life Inc is an IRS 501(c)(3) not-for-profit organization whose mission is to find and match kidney donors for those suffering from various forms of kidney disease.
Note: It is illegal to exchange money for a kidney. No such request will be granted any consideration. 

2 comments:

  1. Fred, You should connect with The Flood Sisters Kidney Foundation to find out if they can be of help. They're a terrific resource. Website: www.floodsisterskidneyfnd.org
    Best regards, Maria Dorfner

    ReplyDelete
  2. This comment has been removed by a blog administrator.

    ReplyDelete

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